Lipoedema is a painful, chronic condition associated with ‘heavy legs’ that are disproportionately larger than the upper body. Compression is known to support tissue, reduce pain and improve mobility. This study aimed to establish types of compression worn by people with lipoedema, identify satisfaction, problems and reasons why some prescribed garments are never worn. The team co-developed, evaluated and promoted an online survey. A total of 373 people with lipoedema completed the survey between 15 March 2024 and 14 May 2024.

All four compression classes and 15 garment types were prescribed to people with lipoedema. Compression classes were not consistent and one in four people did not wear any or all of their most recently prescribed compression garment(s). The most frequent reason for noncompliance was the garment falling down. Specialist measurement and listening to patients’ needs can optimise fit and use of compression. Selecting the target pressure, rather than class, when ordering compression can yield better results. Additional attention to product development is required to prevent garments from falling down during use.